The Pitt Hopkins Research Foundation (PHRF)
This website can be found at
We are very grateful for the use of information from this website.


Dutch Pitt Hopkins Syndroom website
Three families in the Netherlands created the Stichting Pitt Hopkins Syndroom in 2008 and a have a website:


Swiss website for Switzerland, Germany and Austria
A family in Switzerland has created a Pitt Hopkins syndrome website. Here is the site in German:


Contact a Family
Contact a Family has a section in their A to Z of conditions about Pitt Hopkins Syndrome . Here is the site:


Please check out the RareConnect site at where there will be a Section up for Pitt Hopkins Syndrome soon.
RareConnect Connecting Rare Disease Patients Globally.
Here is the site:


Italian website
Associazione Italiana Sindrome di Pitt-Hopkins Insieme di piĆ¹ – ONLUS


Pitt Hopkins Info
A place to find out about other families with Pitt Hopkins Syndrome around the world.
Pitt Hopkins Info