The Pitt Hopkins Research Foundation (PHRF)
This website can be found at
We are very grateful for the use of information from this website.


Dutch Pitt-Hopkins syndroom website
Three families in the Netherlands created the Stichting Pitt-Hopkins Syndroom in 2008 and a have a website:


Swiss website for Switzerland, Germany and Austria
A family in Switzerland has created a Pitt-Hopkins syndrome website. Here is the site in German:


Contact has a section in their A to Z of conditions about Pitt-Hopkins syndrome. Here is the site:


Please check out the RareConnect site at for there  Section for Pitt-Hopkins Syndrome.
RareConnect Connecting Rare Disease Patients Globally.
Here is the site:


Italian website
Associazione Italiana Sindrome di Pitt-Hopkins Insieme di piĆ¹ – ONLUS


Pitt Hopkins Info
A place to find out about other families with Pitt-Hopkins syndrome around the world.
Pitt Hopkins Info