The Pitt Hopkins Research Foundation (PHRF)
This website can be found at www.pitthopkins.org
We are very grateful for the use of information from this website.

 

Dutch Pitt-Hopkins syndroom website
Three families in the Netherlands created the Stichting Pitt-Hopkins Syndroom in 2008 and a have a website:
http://www.pitthopkins.nl/

 

Swiss website for Switzerland, Germany and Austria
A family in Switzerland has created a Pitt-Hopkins syndrome website. Here is the site in German:
http://www.pitthopkins.ch/

 

Contact 
Contact has a section in their A to Z of conditions about Pitt-Hopkins syndrome. Here is the site:
http://www.cafamily.org.uk/medical-information/conditions/p/pitt-hopkins-syndrome/?page=3&f=P

 

RareConnect
Please check out the RareConnect site at for there  Section for Pitt-Hopkins Syndrome.
RareConnect Connecting Rare Disease Patients Globally.
Here is the site:
https://www.rareconnect.org/en

 

Italian website
Associazione Italiana Sindrome di Pitt-Hopkins Insieme di piĆ¹ – ONLUS
Website: http://www.aisph.it/

 

Pitt Hopkins Info
A place to find out about other families with Pitt-Hopkins syndrome around the world.
Pitt Hopkins Info