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We are spread all over the world but we have been working wherever we are, in what ever way we can to raise awareness for Pitt-Hopkins Syndrome. Some have asked their local mayor to declare 18th September as International Pitt-Hopkins Syndrome Awareness day, one family has had the date put up in lights! Some have…

Welcome to the home page of Pitt Hopkins UK.You have found us because you want to find out more about Pitt Hopkins Syndrome in the UK. You probably know that Pitt Hopkins Syndrome is a very rare syndrome. It can in fact be called an ultra orphan disease. This is because there are possibly only 1…